I wanted to share the story of a very special little girl, Rosie Davies. I am donating some of the revenue from my mission packs for FSX:SE including the forthcoming Cargo Crew and the currently available Dangerous Approaches to directly help to provide a quality of life for Rosie. That cannot happen without the generosity and support of the flight simulation community.
Rosie was born with her legs stuck in a crossed position and a gap in her spine. She has Caudal Regression Syndrome and is one of just three people in the world to undergo life-saving and pioneering surgery. Despite having her legs amputated below the knee, it has not stopped her getting around.
Rosie, who describes herself as “a daredevil, nosey, and extra lucky”, has great upper body strength. She uses her arms to push herself along on her skateboard and she can walk on her hands. Surgeons used some of Rosie’s amputated leg bone to fill the gap in her spine between the bottom of her chest and the top of her pelvis. Special rods and plates were then used to secure her chest to her pelvis. As the bone healed it became a natural support.
However, whilst this surgery has undoubtedly saved the life of this tenacious little girl, it is not a panacea for all of her issues. Her lower body remains paralyzed without sensation and Rosie will never walk. As she grows, she faces further major ongoing surgeries to stabilize her body.
Not that amputations have slowed Rosie, far from it! She can often be found outside of her home in the UK midlands town of Walsall on her skateboard and playing with her friends. Whilst others would be confined to a wheelchair, Rosie lives life to the full, on her hands or scooting on her skateboard. If you call her disabled to her face, you can expect a quizzical look and a flat denial from a girl who considers herself to have a very lucky life.
Yet, her care needs are ever present in a multitude of forms, from medical equipment, to specialist clothing (Rosie is not able to wear pants due to a stomach bag and medical appliances permanently attached on the outside of her body!) to just letting a little girl have fun, with a new teddy bear to take to bed or a day out to the zoo.
These needs are never going to go away, with ongoing medical treatments and major surgeries all being part and parcel of Rosie’s life. The good news is that with your generous support the care is never going to go away either, with sales of the mission packs aimed at providing a level of ongoing long term care.
The generosity of the flight simulation community is legendary. I know that you will want to join me in offering our hearts to Rosie, so akin to us aviators, she can reach new heights and fly high in to the future.
You can see a video of Rosie in action here: